Data Network

Definition

To aid sharing among a research group, especially a dispersed group, a data network can be set up to help share and manage data. Creating a data network as opposed to an open repository is especially useful for sharing sensitive data.

Further Resources

Frey LJ, Sward KA, Newth CJ, Khemani RG, Cryer ME, Thelen JL., … Dean JM. (2015). Virtualization of open-source secure web services to support data exchange in a pediatric critical care research network(link is external). Journal of the American Medical Informatics Association, 22(6), 1271–1276. doi.org/10.1093/jamia/ocv009.

Meeker D, Jiang X, Matheny ME, Farcas C, D’Arcy M, Pearlman L, … Ohno-Machado L. (2015). A System to Build Distributed Multivariate Models and Manage Disparate Data Sharing Policies: Implementation in the Scalable National Network for Effectiveness Research(link is external). Journal of the American Medical Informatics Association, ocv017. doi.org/10.1093/jamia/ocv017

Pejša S, Dyke SJ, & Hacker TJ. (2014). Building Infrastructure for Preservation and Publication of Earthquake Engineering Research Data(link is external). International Journal of Digital Curation, 9(2). doi.org/10.2218/ijdc.v9i2.335

Rosenbloom ST, Harris P, Pulley J, Basford M, Grant J, DuBuisson A, & Rothman RL. (2014). The Mid-South Clinical Data Research Network(link is external). Journal of the American Medical Informatics Association, 21(4), 627–632. doi.org/10.1136/amiajnl-2014-002745  

Waitman LR, Aaronson LS, Nadkarni PM, Connolly DW, & Campbell JR. (2014). The Greater Plains Collaborative: a PCORnet Clinical Research Data Network(link is external). Journal of the American Medical Informatics Association, 21(4), 637–641. doi.org/10.1136/amiajnl-2014-002756  

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